The exchange of data has many implications, some beneficial, but some risky. Consider the exchange of sensitive information, a dilemma that has a seemingly simple solution: That information should be protected. Yet, in a public health context, how does privacy complicate the possibility of improving outcomes across a population? For example, how can data drawn from genomic sequencing be protected and contribute to the body of knowledge?
In this Discussion, you explore a similar question.
or this Discussion, consider the following scenario:
You are a nurse geneticist who is working for a teaching and research hospital. Your position is to promote the provider use of genetic testing for a specific drug trial. While most physicians are eager to participate in the research, a provider who primarily treats patients with HIV is reluctant to use the trial on their patients and feels utilizing the database system is a violation of HIPAA.
(precision Medicine and HIPAA)
Required readings
Shen, N., Bernier, T., Sequeira, L., Strauss, J., Silver, M. P., Carter-Langford, A., & Wiljer, D. (2019). Understanding the patient privacy perspective on health information exchange: A systematic review.
Links to an external site. International Journal of Medical Informatics, 125, 1–12.
Baseman, J. G., Revere, D., & Painter, I. (2017). Big data in the era of health information exchanges: Challenges and opportunities for public health
Links to an external site.. Informatics, 4(39), 1–10.
Orlova, A. O., Dunnagan, M., Finitzo, T., Higgins, M., Watkins, T., Tien, A., & Beales, S. (2005). An electronic health record-public health (EHR-PH) system prototype for interoperability in 21st century healthcare systems
Links to an external site.. AMIA Annual Symposium Proceedings, 2005, 575–579. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1560434/
Founds, S. (2018). Systems biology for nursing in the era of big data and precision health
Links to an external site.. Nursing Outlook, 66(3), 283–292.
Calzone, K. A., Kirk, M., Tonkin, E., Badzek, L., Benjamin, C., & Middleton, A. (2018). The global landscape of nursing and genomics.
Links to an external site. Journal of Nursing Scholarship, 50(3), 249–256.
Cheng, M. L., & Solit, D. B. (2018). Opportunities and challenges in genomic sequencing for precision cancer care.
Links to an external site. Annals of Internal Medicine, 168(3), 221–222.
Hesman Saey, T. (2018, November 27) Chinese scientists raise ethical questions with first gene-edited babies
Links to an external site.. Science News. Retrieved from https://www.sciencenews.org/article/chinese-scientists-raise-ethical-questions-first-crispr-gene-edited-babies
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